TY - JOUR
T1 - Treatment challenges in and outside a network setting
T2 - Soft tissue sarcomas
AU - RARECAREnet Working Group
AU - Pasquali, Sandro
AU - Bonvalot, Sylvie
AU - Tzanis, Dimitri
AU - Casali, Paolo G.
AU - Trama, Annalisa
AU - Gronchi, Alessandro
AU - Hackl, Monika
AU - Van Eycken, Elizabeth
AU - Henau, Kris
AU - Dimitrova, Nadya
AU - Sekerija, Mario
AU - Dušek, Ladislav
AU - Mägi, Margit
AU - Malila, Nea
AU - Leinonen, Maarit
AU - Velten, Michel
AU - Troussard, Xavier
AU - Bouvier, Veronique
AU - Guizard, Anne Valérie
AU - Bouvier, Anne Marie
AU - Arveux, Patrick
AU - Maynadié, Marc
AU - Woronoff, Anne Sophie
AU - Robaszkiewicz, Michel
AU - Baldi, Isabelle
AU - Monnereau, Alain
AU - Tretarre, Brigitte
AU - Colonna, Marc
AU - Molinié, Florence
AU - Bara, Simona
AU - Schvartz, Claire
AU - Lapôtre-Ledoux, Bénédicte
AU - Grosclaude, Pascale
AU - Stabenow, Roland
AU - Luttmann, Sabine
AU - Nennecke, Alice
AU - Engel, Jutta
AU - Schubert-Fritschle, Gabriele
AU - Heidrich, Jan
AU - Bernd Holleczek, Holleczek
AU - Jónasson, Jón Gunnlaugur
AU - Clough-Gorr, Kerri
AU - Comber, Harry
AU - Mazzoleni, Guido
AU - Giacomin, Adriano
AU - Sardo, Antonella Sutera
AU - Barchielli, Alessandro
AU - Serraino, Diego
AU - De Angelis, Roberta
AU - Mallone, Sandra
N1 - Publisher Copyright:
© 2017 Elsevier Ltd, BASO ~ The Association for Cancer Surgery, and the European Society of Surgical Oncology
PY - 2019/1
Y1 - 2019/1
N2 - Patients with soft tissue sarcoma (STS) experienced better outcomes when treated according to existing clinical practice guidelines either at reference institution or dedicated treatment networks. Despite increasing evidence supporting referral to sarcoma specialised units, up to half of patients are not managed according to guidelines, particularly those in the early stage of their disease requiring surgery. Also, criteria to certify expertise of institutions, such as the treatment volume, are debated and health authorities have only recently started identification of these centres and creation of treatment networks in Europe as well as in several countries. This process have important implications for both patient outcomes and innovation of existing treatment strategies through clinical research, making improvement of clinical pathways a priority for health care authorities. This article will discuss issues with management of patients with STS, such as pathological diagnosis and adherence to guidelines, and the definition of referral centres and networks will be illustrated along with existing experiences and population-based data.
AB - Patients with soft tissue sarcoma (STS) experienced better outcomes when treated according to existing clinical practice guidelines either at reference institution or dedicated treatment networks. Despite increasing evidence supporting referral to sarcoma specialised units, up to half of patients are not managed according to guidelines, particularly those in the early stage of their disease requiring surgery. Also, criteria to certify expertise of institutions, such as the treatment volume, are debated and health authorities have only recently started identification of these centres and creation of treatment networks in Europe as well as in several countries. This process have important implications for both patient outcomes and innovation of existing treatment strategies through clinical research, making improvement of clinical pathways a priority for health care authorities. This article will discuss issues with management of patients with STS, such as pathological diagnosis and adherence to guidelines, and the definition of referral centres and networks will be illustrated along with existing experiences and population-based data.
KW - Guidelines
KW - Network
KW - Referral centre
KW - Sarcoma
KW - Treatment
UR - http://www.scopus.com/inward/record.url?scp=85030482966&partnerID=8YFLogxK
U2 - 10.1016/j.ejso.2017.09.015
DO - 10.1016/j.ejso.2017.09.015
M3 - Article
C2 - 28985973
AN - SCOPUS:85030482966
SN - 0748-7983
VL - 45
SP - 31
EP - 39
JO - European Journal of Surgical Oncology
JF - European Journal of Surgical Oncology
IS - 1
ER -