The unrecognised cost of cancer patients' unrelieved symptoms: A nationwide follow-up of their surviving partners

U. ValdimarsdÓttir, R. Helgason, J. Adolfsson, G. Steineck, J. Adolfsson

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77 Citations (Scopus)

Abstract

We investigated if a cancer patient's unrelieved symptoms during the last 3 months of life increase the risk of long-term psychological morbidity of the surviving partner. All women (n=506) living in Sweden under 80 years of age, who lost their husband/partner owing to cancer of the prostate in 1996 or of the urinary bladder in 1995 or 1996 were asked to answer an anonymous postal questionnaire, 2-4 years after their loss. The widows' psychological morbidity was associated with the patient's unrelieved mental symptoms. When the patient was perceived to have been very anxious during last three months of life (compared to no observed symptoms) the relative risks for the widows' psychological morbidity were: 2.5 (1.4-4.3) for depression and 3.4 (1.4-8.2) for anxiety. When comparing reports of the patient's pain (much vs no), the relative risks were 0.8 (0.5-1.2) for widowhood depression, and 0.8 (0.4-1.7) for widowhood anxiety. The patients were found to have had adequate access to physical pain control but poor access to psychological symptom control. Efficiency in diagnosing and treating psychological complications of terminally ill cancer patients may not only improve their quality of life but possibly also prevent long-term psychological morbidity of their surviving partners.

Original languageEnglish
Pages (from-to)1540-1545
Number of pages6
JournalBritish Journal of Cancer
Volume86
Issue number10
DOIs
Publication statusPublished - 20 May 2002

Bibliographical note

Funding Information:
The study was supported by grants from the Swedish Cancer Society and the Stockholm Cancer Foundation. We thank the widows who made the study possible by bravely sharing their experiences with us.

Other keywords

  • Adaptation
  • Bereavement
  • Family
  • Psychological
  • Symptom control
  • Terminal care

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