Surviving childhood cancer: Parents' perceptions of their child's health

Erla Kolbrun Svavarsdottir*

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

15 Citations (Scopus)

Abstract

The improving prognosis for children with cancer refocuses attention to long-term outcomes. The purpose of this study was to assess whether changes in mothers' and fathers' perception of caregiving demands and well-being over a 1-year time period predicted parents' perception of their child's health at 12 months and to evaluate if these variables predicted change in health perceptions over a period of 1 year. Twenty Icelandic families of children younger than 18 years with cancer participated in the study. The change in general well-being over the year significantly predicted parents' perception of their child's health at 12 months; for the mothers, the change in well-being also predicted the changes in their perception of their child's health over the 1-year period. These findings suggest the importance of incorporating long-term health-related outcomes and measures to improve well-being among family members in future research and clinical practice, when caring for children and families surviving childhood cancer.

Original languageEnglish
Pages (from-to)80-88
Number of pages9
JournalJournal of Pediatric Oncology Nursing
Volume22
Issue number2
DOIs
Publication statusPublished - Mar 2005

Other keywords

  • Childhood cancer
  • Parents' perception
  • Survival

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