Shift in translations: Data work with patient-generated health data in clinical practice

Anna Sigridur Islind*, Tomas Lindroth, Johan Lundin, Gunnar Steineck

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

11 Citations (Scopus)


This article reports on how the introduction of patient-generated health data affects the nurses’ and patients’ data work and unpacks how new forms of data collection trigger shifts in the work with data through translation work. The article is based on a 2.5-year case study examining data work of nurses and patients at a cancer rehabilitation clinic at a Swedish Hospital in which patient-generated health data are gathered by patients and then used outside and within clinical practice for decision-making. The article reports on how data are prepared and translated, that is, made useful by the nurses and patients. Using patient-generated health data alters the data work and how the translation of data is performed. The shift in work has three components: (1) a shift in question tactics, (2) a shift in decision-making, and (3) a shift in distribution. The data become mobile, and the data work becomes distributed when using patient-generated health data as an active part of care.

Original languageEnglish
Pages (from-to)577-586
Number of pages10
JournalHealth Informatics Journal
Issue number3
Publication statusPublished - 1 Sep 2019

Bibliographical note

Publisher Copyright:
© The Author(s) 2019.

Other keywords

  • clinical practice
  • data work
  • patient-generated health data
  • translation work


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