From noticing to suspecting: The initial stages in the information behaviour of informal caregivers of people with dementia

Ágústa Pálsdóttir*

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

2 Citations (Scopus)

Abstract

The information behaviour of informal caregivers of people with dementia was explored, from when the first symptoms of dementia were noticed until a decision to seek medical attention was made. Qualitative methods were applied and interviews conducted with 21 caregivers. Their information behaviour went through a sequence of three stages, in line with Holly Skodol Wilson’s temporal model [27]: (1) Information about the disease is noticed; (2) Interpretation of information – Normalizing and discounting; (3) Suspecting – Purposive information seeking begins. As their information need developed, as described by Taylor [15], the caregivers moved from relying on opportunistic information seeking at the first two stages, to using both opportunistic and purposive seeking on the third stage. After they had fully developed their information need, they could seek information that was useful for bridging their knowledge gap, which allowed them to move forward to the decision to seek medical advice for the patients. The second stage of the process was particularly complicated as the caregivers misinterpreted the information about dementia that they came across as signs of something else. More public discussion by professionals about dementia could provide the caregivers and the patients with a better understanding of the disease. This in turn might help to shorten the time spent at the second stage, making it possible for the caretakers to enter the third stage more quickly, and thereby to come to the decision to seek medical advice.

Original languageEnglish
Title of host publicationHuman Aspects of IT for the Aged Population
Subtitle of host publicationApplications, Services and Contexts - Third International Conference, ITAP 2017 Held as Part of HCI International 2017, Proceedings
EditorsGavriel Salvendy, Gavriel Salvendy, Gavriel Salvendy, Jia Zhou
PublisherSpringer Verlag
Pages452-466
Number of pages15
ISBN (Print)9783319585352
DOIs
Publication statusPublished - 2017
Event3rd International Conference on Human Aspects of IT for the Aged Population, ITAP 2017, held as part of the 19th International Conference on Human-Computer Interaction, HCI 2017 - Vancouver, Canada
Duration: 9 Jul 201714 Jul 2017

Publication series

NameLecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume10298
ISSN (Print)0302-9743
ISSN (Electronic)1611-3349

Conference

Conference3rd International Conference on Human Aspects of IT for the Aged Population, ITAP 2017, held as part of the 19th International Conference on Human-Computer Interaction, HCI 2017
Country/TerritoryCanada
CityVancouver
Period9/07/1714/07/17

Bibliographical note

Publisher Copyright:
© Springer International Publishing AG 2017.

Other keywords

  • Dementia
  • Informal caregivers
  • Information behaviour

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