Áttavitinn – rannsókn á reynslu einstaklinga af greiningu og meðferð krabbameina á Íslandi árin 2015-2019

Translated title of the contribution: Cohort study on the experiences of cancer diagnosis and treatment in Iceland in the year 2015-2019

Jóhanna E. Torfadóttir, Sigrún Eva Einarsdóttir, Asgeir R. Helgason, Birna Þórisdottir, Rebekka Bjorg Gudmundsdottir, Anna Bara Unnarsdottir, Laufey Tryggvadottir, Helgi Birgisson, Gudfinna Halla Thorvaldsdottir

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INTRODUCTION: In the coming years, an increase in the number of cancer cases can be expected in Iceland. It is important to gain more insight into the experiences of the diagnostic- and treatment phase among those diagnosed with cancer to improve quality of life and life expectancy.

METHODS: The study included 4575 individuals diagnosed with cancer between 2015 and 2019 in Iceland, 18 years or older at the time. Participants answered an on-line questionnaire once between 2020 and 2021.

RESULTS: A total of 1672 (37%) individuals responded to the questionnaire. The mean age at diagnosis was 59 years (±12). The majority of participants were informed on their cancer diagnosis during a doctor's appointment (67%), but a quarter (25%) received the information by telephone. A total of 77% of participants were satisfied with the diagnostic process, thereof relatively fewer women than men (73% vs. 83%) (p<0,001). Fewer of those who received the cancer diagnosis by telephone were pleased with the diagnostic process (62%) compared with those receiving information during a doctor's appointment (85%) (p<0,001). More women (58%) than men (33%) expressed the need for support regarding mental well-being from healthcare professionals during the diagnostic process (p<0.001). In 2015, 36% of participants started treatment more than month after diagnosis, compared with 51% in 2019. The need for various specific resources during treatment, e.g. physiotherapy, psychological services or nutritional counseling were regularly assessed among 20-30% of participants.

CONCLUSION: A quarter of respondents diagnosed with cancer received information about the diagnosis over the phone instead of an interview. There is a suggestion that the time from diagnosis to the start of cancer treatment is increasing. It is necessary to assess whether it is possible to support individuals with cancer better during the diagnostic- and treatment phase based on their individual needs.

Translated title of the contributionCohort study on the experiences of cancer diagnosis and treatment in Iceland in the year 2015-2019
Original languageIcelandic
Pages (from-to)447-454
Number of pages8
Issue number10
Publication statusPublished - 1 Oct 2022

Other keywords

  • cancer
  • cancer diagnosis
  • cancer treatment
  • cohort study
  • public health


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